If someone you care about is taking part in a clinical trial, your support can make a meaningful difference to how grounded, understood and cared for they feel. Trials can bring moments of hope, uncertainty, reflection and change — and having someone alongside them can help make the experience feel safer and more manageable.

Here are some gentle ways you can support them throughout their journey.

1. Be present without pressure

Taking part in a trial is a personal decision and a personal experience. Some days they may want to talk; other days they may not. Let them set the pace. Simple check-ins such as:

• “How are you feeling today?”

• “Would you like to talk about it, or would you prefer a distraction?”

…can go a long way.

2. Encourage open, non-judgemental conversations

They may experience new emotions, thoughts, or reflections during the trial. Listen with curiosity rather than trying to interpret or fix things. Statements like:

• “That sounds like a lot — I’m here with you.”

• “Tell me more if you’d like to.”

…help them feel met, not analysed.

3. Help with the practical things

Support can be simple and practical, for example:

• helping them plan travel to the clinic

• reminding them of appointment times

• joining them on the journey (if welcomed)

• creating a calm space for them before or after sessions

These small acts can reduce stress and help them feel held.

4. Respect their privacy and autonomy

Trials involve confidential medical information. They may choose to share some parts with you and keep others private. Let them lead the conversation and respect the boundaries they set.

5. Stay steady if things feel uncertain

Research can involve ups and downs. They may feel hopeful one day and unsettled the next. Your steadiness — simply being someone who doesn’t react strongly or draw conclusions — can be deeply grounding.

You don’t need to have answers; your presence matters more.

6. Look after yourself too

Supporting someone through a trial can bring up your own emotions — worry, hope, confusion or responsibility. It’s okay to have your own needs. Taking care of yourself helps you stay steady for them.

If you need reassurance or general guidance, you can ask the study team broad questions about the process (without expecting personal details).

7. Celebrate their courage

Taking part in a trial is a brave step, especially when someone is living with a challenging condition. Acknowledging their courage — gently and without making it a big performance — can help them feel recognised.

8. Be there as they transition out of the trial

Whether the experience felt helpful, difficult or somewhere in between, people often need support after the final visit. Offering companionship, routine, and a listening ear can help them reconnect with everyday life.

Your support is meaningful

You don’t need clinical expertise to support someone in a trial. What they often need most is someone who is:

• present

• patient

• grounded

• and willing to walk alongside them

The research team handles the medical side. You can help us hold the human side.